Tuesday, December 14, 2010
This weekend I flew home to be with my family at a difficult time. My cousin's young son passed away last week at the age of 4 due to complications with an epilepsy-like condition, believed (but not conclusively) to perhaps be a form of leukodystrophy. The kid was a fighter but everybody has their limits, unfortunately. Being asked to take photographs during the wake and burial seriously tested my ability to photograph thoughtfully during intense situations, and the grief of his parents was only offset by the knowledge that he had the best care possible. You can get a sense of how much support he had by reading my cousin's blog, Letters to Jakey. I tell you all this mainly in the hopes someone will be moved, per the family's wishes, to send donations to the Massachusetts General Hospital Pediatric Epilepsy Program, c/o Dr. Elizabeth Thiele, 175 Cambridge Street, Suite 340, Boston, MA 02114.